Published on December 11th, 2014 | by Daniel Castro

Data-Driven Medicine in the Age of Genomics

Special guest Senator Michael Bennet (D-Colorado) will deliver keynote remarks.

Since the enactment of the HITECH Act in 2009, taxpayers and the medical industry have collectively invested more than $100 billion in an information technology infrastructure suited to America’s 21st century health needs. These investments hold vast potential for revolutionizing medical science, population health, and cost management. Yet realizing this promise requires progress on a wide range of market, regulatory and legislative obstacles, many of which are relics of a “pre-data” era. Nowhere are the potential opportunity costs greater than in genomic medicine—the mapping and sequencing of genes to discover and create individualized treatments for genetically driven diseases like cancer and diabetes.

Health IT Now and the Center for Data Innovation are convening a full-day summit that will delve into the rapidly expanding market of data-driven solutions that support genomic research and applications in health care. The goal of the summit is to identify the necessary reforms—both legislative and regulatory—to promote data-driven medicine in ways that meaningfully transform care delivery, improve health outcomes and decrease health spending.

Specifically the summit will cover the following themes:

  • The promise of genomics and an outlook into the future of data-driven medicine;
  • Challenges related to data sharing, interoperability and data analytics; and
  • The legislative and regulatory barriers against further progress in the field.

Date and Time:

  • Thursday, December 11, 2014 from 9:00 AM – 3:45 PM EDT (registration opens at 8:15 AM)

Location:

  • Reserve Officers Association, 1 Constitution Avenue NE, Washington, DC 20002

Agenda:

Featured Speakers:

  • Sen. Michael Bennet (D-Colorado)
  • Dr. Toby Bloom, PhD, New York Genome Center
  • Daniel Castro, Director, Center for Data Innovation
  • Dr. Don Detmer, University of Virginia; Centre for Health Informatics and Multiprofessional Education (CHIME)
  • Dr. Dave Dworaczyk, Director of Life and Health Sciences and Strategic Development, Oracle – view presentation
  • Merrill Goozner, Editor, Modern Healthcare
  • Peter Hodge, Advisory Committee Chairman, Cystic Fibrosis Foundation
  • Robert Horne, Professional Staff Member, House Committee on Energy and Commerce
  • Drew Kent, Chief of Staff, Rep. Charlie Dent (R-PA)
  • David H. Ledbetter, Executive Vice President & Chief Scientific Officer, Geisinger Health System – view presentation
  • Paul Magelli, CEO, Pervasive Health
  • Dr. Ketan Paranjape, Director of Personalized Medicine, Intel – view presentation
  • Marc Perlman, Global Vice President, Oracle
  • Dr. Josh Peterson, Assistant Professor of Biomedical Informatics and Medicine, Vanderbilt University School of Medicine
  • Wendell Primus, Chief Policy Advisor, Rep. Nancy Pelosi (D-CA)
  • Dr. Jun S. Song, Founder Professor of Bioengineering and of Physics, University of Illinois at Urbana-Champaign
  • Dr. Karen Summar, Legislative Counsel, Rep. Marsha Blackburn (R-TN)
  • Joel White, Executive Director, Health IT Now!
  • Dr. Jon White, Deputy National Coordinator, The Office of the National Coordinator for Health Information Technology
  • Dr. Jane Yu, Senior Advisor, Healthcare and Life Sciences, IBM – view presentation

Many thanks to Intel, IBM, Oracle, and PhRMA for their support of this conference.

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About the Author

Daniel Castro is the director of the Center for Data Innovation and vice president of the Information Technology and Innovation Foundation. Mr. Castro writes and speaks on a variety of issues related to information technology and internet policy, including data, privacy, security, intellectual property, internet governance, e-government, and accessibility for people with disabilities. His work has been quoted and cited in numerous media outlets, including The Washington Post, The Wall Street Journal, NPR, USA Today, Bloomberg News, and Businessweek. In 2013, Mr. Castro was named to FedScoop’s list of “Top 25 most influential people under 40 in government and tech.” In 2015, U.S. Secretary of Commerce Penny Pritzker appointed Mr. Castro to the Commerce Data Advisory Council. Mr. Castro previously worked as an IT analyst at the Government Accountability Office (GAO) where he audited IT security and management controls at various government agencies. He contributed to GAO reports on the state of information security at a variety of federal agencies, including the Securities and Exchange Commission (SEC) and the Federal Deposit Insurance Corporation (FDIC). In addition, Mr. Castro was a Visiting Scientist at the Software Engineering Institute (SEI) in Pittsburgh, Pennsylvania where he developed virtual training simulations to provide clients with hands-on training of the latest information security tools. He has a B.S. in Foreign Service from Georgetown University and an M.S. in Information Security Technology and Management from Carnegie Mellon University.



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